Complaint History & Business Rating for Aspirus Wausau Hospital

Elizabeth W. says: I have recieved disgusting and harmful repeated dismissal regarding my hypermobile ehlers danlos syndrome. Both of my parents died at the hands of aspirus cardiac doctors after similar issues and unknown chronic condition. I am the only one in my family to actually have a diagnosis and correlating genetic testing. There is several indicators in my family history to recieve validation. Yet I don't ever receive that at any of the departments I'm currently a patient of. I've donated my dna to the all of us research program to be able to learn more information on better management of this condition. I've had genetic indicators since I was born and then several misdiagnosis events. I've been given harmful medication that causes severe reactions and then belittled in the er by Dr. Obst and his respective nurses for refusing medication I already is harmful to me. Medication is not my first go to.. but it is theirs and my entire childhood I was pumped full of wrong very serious arthritis medications that significantly compromised my immune system. Connective tissue disorders are actively being researched and new information regarding gene variants recently yet medical providers refuse to educate themselves to provide better care. I am a previous end of life care and memory care cna and my career I am very passionate about. I have been significantly disabled because of lack of answers and care. I can no longer pursue the many things I'd very love the energy to do. I have been diagnosed with cardiac involvement, neurological features, cranial instability and chronic fatigue syndrome. This did not have to get this far if any one was smart enough to look. I repeatedly injured myself just by living and for most of which issues I didn't have an answer for. I had to pursue my own genetic testing and also pay for it myself. My EDS Dr in Madison made the referral for genetic testing and counseling so I could talk to someone to understand these very complex issues. I've done everything right by healthcare standards and none of that mattered. Still looked at as having mental instability when I am most certainly highly intelligent and do not deserve these harmful biases. These doctors are not helping people similar to me. hEDS is very under diagnosed and my entire family has indicators yet I'm the only one diagnosed. Spontaneous heart death is no joke and family history is absolutely probable cause to validate my inquiries. I've reported on the aspirus system with the same information and I've received a response. I still don't think anything will be done about it. My general practitioner admittedly doesn't know much about Connective tissue disorders. I am on badger care have been my whole life and because I am poor I'm not given adequate care. We already know that environmental, financial, social and economic conditions are important in receiving proper therapies for very serious conditions. If I could afford it I most certainly could have avoided all this injury and progression of my illness. I could have had known actually helpful therapies and treatments. Not just being thrown random pharmaceuticals I in no way want to put in my body that we already know harm me and are not right for my connective tissue disorder. This is not acceptable. The EDS community all report similar findings in uneducated drs and I will no longer subject myself to this abuse. If they refuse to look at genome research that is neglectful 100%. If they think I don't have adequate medical background to be able to understand then that's their fault I do understand and I've seen chronic illnesses in live bodies and post mortem bodies in my job. I understand more than most so I can imagine everyone else with undiagnosed eds with no medical knowledge is feeling. It's probably pretty bad. Please look into this it is definitely important to the advancement of chronic illness. Thank you